Hi everyone, I'm Tammy and am newly diagnosed with EDS (my teen daughters are not being diagnosed officially at this time, but they clearly have it as well). I'm hoping some on this team are still active, because I could really use some advice and just some conversations with people who understand. It took me three years to finally find out what was wrong....and I am fatigued and overwhelmed and worried about the future, but really trying to stay positive.
Hello spoonies its that time of the year again. I will be at the chicago lupus walk .I walk for family members with lupus and for those of you that can come on out and join us at montrose harbor.
Hi! I'm Leah! I have Hashimoto's and some type of hypermobile issues. I am in the process of being tested for cEDS and clEDS. I look forward to making some new friends here! I make jewelry as a way to keep my mind off some of the pain and other unpleasantries that come with those issues. My shop does carry a slave bracelet of sorts that would be great for those wearing ring splints to help keep their splints from leaving them at inopportune times! .